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1 – 10 of 144Monica Cerdan Chiscano and Simon Darcy
Following the COVID-19 pandemic, airports have begun implementing more digital technologies. While these technologies can enhance the airport experience for passengers on the…
Abstract
Purpose
Following the COVID-19 pandemic, airports have begun implementing more digital technologies. While these technologies can enhance the airport experience for passengers on the autism spectrum, this population tends to be studied as a single segment. However, people on the autism spectrum have different preferences, skills and abilities and levels of acceptance of digital technologies. We aim to explore the acceptance of recently implemented digital technologies, self-service kiosks and other digital technologies such as biometric facial recognition in the airport environment among passengers on the autism spectrum, who are not a single segment.
Design/methodology/approach
We carried out an academic-industry collaboration project in 2022 at Barcelona’s Josep Tarradellas Airport with the Spanish airport operator Aena, Vueling Airlines, three associations representing people on the autism spectrum (stakeholders) and 60 participants on the autism spectrum recruited by the three associations. Interviews were conducted during the airport visits to compare airport experiences: Group 1 provided input on the traditional airport experience using manual or analogue processes, and Group 2 provided feedback on the airport experience using digital technologies.
Findings
The use of cluster analysis revealed three distinct segments: traditional, automated with assistance from others and digital. Our findings provide airports with insights into recently implemented digital technologies at airports for passengers on the autism spectrum.
Originality
This article brings new knowledge about passengers on the autism spectrum and their relationship with digital technologies in the airport environment, a topic that has not been previously studied.
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Ioanna Georgiou and Stavros K. Parlalis
The purpose of this study is to highlight the need to develop and expand specialized support for people with ASD, examining the effect of these services on their families' quality…
Abstract
The purpose of this study is to highlight the need to develop and expand specialized support for people with ASD, examining the effect of these services on their families' quality of life. Despite efforts to promote diversity and equal opportunities for people with disabilities, Cyprus faces challenges in various levels such as in society, education, and employment. Unlike other countries, there is limited literature and data on adults with ASD in Cyprus, which prevents from forming an accurate assessment of their needs and the impact on their quality of life. Further, as a European Union Member State, Cyprus has restrictions on specialized programs and benefits, which makes it difficult to fully implement the UN Convention on the Rights of Persons with Disabilities (CRPD). This led to a lack of effective support services for adults with ASD and their families. Consequently, parents express concerns about the support that will be available for their adult children in the future. This study uses qualitative data obtained through the constant comparative method and is part of a larger project that includes both quantitative and qualitative research methods. The study presents important issues such as the positive impact of services on these adults and their families, families' concerns about specialized support and programs for people with ASD, and their relationships with their parents. The results are expected to raise awareness, promote social policy development, and improve the quality of life of people with ASD and their families in Cyprus.
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Rebecca Day, Luke Simmons, Elizabeth Shade, Jo Jennison, Clare S. Allely and Raja A.S. Mukherjee
Recent research has proposed a specific female phenotype within autism spectrum disorder (ASD). It suggests females exhibit differences in social communication styles with higher…
Abstract
Purpose
Recent research has proposed a specific female phenotype within autism spectrum disorder (ASD). It suggests females exhibit differences in social communication styles with higher levels of camouflaging and compensatory strategies, as well as variance in restrictive repetitive behaviours (RRBs); however, many existing studies have been based on either small, disproportionate or child and adolescent samples, leaving questions about the specific phenotype. This study aims to explore the sex difference and phenotype in a clinic sample of individuals diagnosed with autism.
Design/methodology/approach
A service evaluation of sex/ gender differences on 150 historical ASD assessment reports (75 males, 75 females) using a 103-item questionnaire developed from a quantitative review of existing literature was undertaken.
Findings
Females camouflaged more significantly than males in five different areas (thinking how to act next, preparing conversation in advance, making lists of prompts/social responses, wearing a mask/acting, less monotone voice); however, these were not maintained in post-analysis correction.
Originality/value
This study points the evidence towards a different phenotype of Autism that is more common in women than men rather than a unique female phenotype.
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Zainab Al-Attar and Rachel Worthington
Clinically, it is often observed that autistic people may have a heightened need for rules and may find rule violations very distressing. It is clinically plausible that autistic…
Abstract
Purpose
Clinically, it is often observed that autistic people may have a heightened need for rules and may find rule violations very distressing. It is clinically plausible that autistic individuals may be prone to hyper-morality and greater reactivity and adverse experiences arising from moral threats and violations. Such adverse experiences may, in some instances, lead to moral distress (MD) or in more extreme cases moral injury. Thus, this study aims to examine how MD can operate in the context of autism.
Design/methodology/approach
The authors explore clinical hypotheses on how MD can intersect with different features of autism by drawing on clinical and research knowledge of autism spectrum disorder and how it contextualises experiences of morality.
Findings
Based on a review of the literature and theory, the authors hypothesise that autistic individuals may be more prone to MD where they have a lower threshold for MD. As a result of this lower threshold, they may have more frequent exposure to MD, experience more immediate and intense subjective reactions to moral transgressions, for more protracted periods. Also, they may find it more difficult to over-ride and neutralise moral outrage. As a result, they may be more susceptible to mental health sequelae and impaired social and occupational functioning. Practical recommendations are made for clinicians supporting people with autism with a propensity for MD or moral injury, to improve their quality of life.
Practical implications
Practical recommendations are made for clinicians supporting people with autism with a propensity for MD or moral injury, to improve their quality of life.
Originality/value
Understanding MD in an autistic context is important for detecting and treating the adverse impacts of MD on autistic individuals. Importantly, erroneous preconceptions about moral reasoning in autism need to be mitigated to fully understand the moral experiences and harness the many strengths of people with autism.
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Parents whose children have undergone an autism assessment often describe the process as extremely stressful. This affects how parents engage with services post-diagnosis, meaning…
Abstract
Purpose
Parents whose children have undergone an autism assessment often describe the process as extremely stressful. This affects how parents engage with services post-diagnosis, meaning less likelihood of using subsequent service support despite struggling to cope. Since parents already report many barriers to accessing services, e.g. long waiting lists, lack of co-ordination and limited resources (Sapiets et al. 2023), negative experiences during assessment should not pose another potential barrier to engagement. This study aimed to address how families’ needs can be better met during the assessment process.
Design/methodology/approach
In this qualitative study, the author conducted semi-structured interviews with 11 parents whose child had undergone an autism assessment in the last five years. Thematic analysis determined key themes.
Findings
The six themes were: clarity and communication, access to support and resources, aftercare, recognition of parent concerns, personalisation of the assessment process and concerns around the use of personal protective equipment/online assessments. These themes led to criteria to assess the quality of autism assessment services in line with parent perspectives.
Practical implications
These parent-informed criteria could facilitate the consideration of parents’ views into service evaluations of autism assessment services across the UK.
Originality/value
Previous research indicates that the autism assessment experience is often extremely stressful and overwhelming for families (Crane et al., 2016). Despite this, guidance to improve autism services rarely prioritises the opinions and experiences of service-users and their families. The criteria presented here were derived from themes identified by interviewing parents on their experiences of the autism assessment process, thus shifting the focus onto service-users.
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Arielle S. Ramey, Vanessa R. Rainey and Samantha R. Seals
A chaotic home environment, marked by disorganization, noise and a lack of routine, has negative associations with language development, social competence and executive…
Abstract
Purpose
A chaotic home environment, marked by disorganization, noise and a lack of routine, has negative associations with language development, social competence and executive functioning. This study aims to investigate the mediating effect of chaotic homes on adaptive behaviors, or behaviors that allow independent functioning, in children diagnosed with autism spectrum disorder (ASD) compared to neurotypical (NT) children. Children with ASD have difficulties with adaptive functioning in their environment, and identifying factors in the home that may exacerbate these behaviors will help in understanding the larger family dynamics that may affect behavior.
Design/methodology/approach
In total, 251 primary caregivers completed questionnaires about their children’s adaptive behavior and the structure of the home environment.
Findings
The results of a mediation analysis found a significant indirect effect of ASD status leading to lower adaptive behaviors through home chaos. This suggests those with ASD experienced more household chaos than NT children, which influenced their lower adaptive behavior scores.
Originality/value
This research provides insights into the complex relationship between the home environment and child behavior in children with ASD.
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Zhengbiao Han, Huan Zhong and Preben Hansen
This study aims to explore the information needs of Chinese parents of children with Autism Spectrum Disorder (ASD) and how these needs evolve as their children develop.
Abstract
Purpose
This study aims to explore the information needs of Chinese parents of children with Autism Spectrum Disorder (ASD) and how these needs evolve as their children develop.
Design/methodology/approach
This study collated 17,122 questions regarding raising children with ASD via the Yi Lin website until November 2021.
Findings
The information needs of parents of children with ASD were classified into two categories: 1) Cognition-motivation: related to children with ASD; and 2) Affection-motivation: related to their parents. Child development causes the adaptation of information needs of these parents. Within the first three years, nine different topics of these parents' information needs were identified. Major information needs at this stage are as follows: intervention content, intervention methods and pre-diagnosis questions. During the ages of three to six years, there were 13 topics of information needs for parents, focusing on three areas: intervention content, intervention methods and diagnosis and examination. There are eight topics of information needs post six years. Parents are more concerned with the three topics of intervention content, life planning and intervention methods.
Originality/value
This novel study indicates the complex and changing information needs of parents of children with ASD in China. It may enhance the understanding of the information needs of these parents at theoretical and practical levels, provide support for them to understand their own information needs and provide a reference for relevant government and social organisations to provide targeted information services for them.
Peer review
The peer review history for this article is available at: https://publons.com/publon/10.1108/OIR-04-2022-0247
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Pariya Sheykhmaleki, Seyed Abbas Agha Yazdanfar and Sanaz Litkouhi
Although some architects have found spatial order and proportion strategy effective in designing the environment for autistic children, it is not clear what spatial ratios are…
Abstract
Purpose
Although some architects have found spatial order and proportion strategy effective in designing the environment for autistic children, it is not clear what spatial ratios are preferred for autistic people. Therefore, this study aims to find the desired ratio among autistic and non-autistic children.
Design/methodology/approach
The scale model questionnaire was chosen to determine the difference in the ratio preferences for autistic and non-autistic children, whereas two access types between the space zones are also considered. The questionnaire was administered to 50 autistic children, with a half-and-half distribution of moderate and mild autism groups, while males are twofold. It was also administered to 50 non-autistic children, approximately equal in terms of gender division. The scale model was designed in the form of a dollhouse to be played with a doll in 6 varied rooms categorized by 3 different ratios (1:1, golden ratio, 1.6:1 and 5:2) and 2 access types (linear and radial access) to measure how many times each room was selected by each group to run numerical analysis.
Findings
It was shown that, although the golden ratio has been previously considered in space design for autistic children, they appealed to the ratio of 2:5 with high frequency. While there is a significant difference between the spatial ratios preferred by autistic and non-autistic children choosing the golden ratio, the same type of space access system is preferred by both groups in their results.
Originality/value
Despite the prevalent use of the golden ratio in design for autism design, this research shaped an empirical study for autistic users concluding a different perspective in design for autism.
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Zhengbiao Han, Huan Zhong and Preben Hansen
To reveal the emotions and information needs expressed by Chinese parents of children with autism spectrum disorder (ASD) in an online forum, and their relationship.
Abstract
Purpose
To reveal the emotions and information needs expressed by Chinese parents of children with autism spectrum disorder (ASD) in an online forum, and their relationship.
Design/methodology/approach
The 10,062 data were from “Yi Lin”, China’s largest online forum for ASD. Open coding identified parents’ emotions and information needs, and a chi-squared test explored the correlation.
Findings
First, parents’ emotions were categorized into four themes: emotions about coping with their child’s care, emotions about the parents’ own behavior, emotions about social support with other parents and emotions about anticipating the future. Parents’ overall emotions were negative (72.47%), while the tendency of emotions varied among the four themes. Second, five information needs topics were expressed: intervention and training of ASD, parenting experiences, schooling issues, social interaction and support and future development. Different information needs topics contained different themes of emotions. Third, the tendency of emotions and expression of information needs were significantly correlated. Negative emotions had a statistically significant correlation in expression of information needs.
Originality/value
This study reveals the relationship between the emotions and information needs expressed by parents of children with ASD. The ASD forum could develop emotional support modules and functions for parents and facilitate emotional communication between parents.
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Family–school partnerships are an essential component of the special education process for children with disabilities. Notably, recent legislative reauthorizations of IDEA (2004)…
Abstract
Family–school partnerships are an essential component of the special education process for children with disabilities. Notably, recent legislative reauthorizations of IDEA (2004) have focused on increasing parent involvement. For many parents, participation occurs primarily through the individualized education program (IEP) meetings. Parent involvement often includes parent advocating for their children. However, many parents face barriers when advocating to obtain appropriate special education services for their children with disabilities. Culturally and linguistically diverse families face greater systemic barriers (e.g., language and cultural differences) to access services for their own children with disabilities. School professionals can foster opportunities to help families be active members of the IEP process. For example, school professionals should connect families with resources to learn about their special education rights. Specifically, school personnel can encourage families to reach out to their local Parent Training and Information (PTI) Center to be educated and empowered to advocate for services. In addition, parents can be encouraged to attend parent advocacy programs to help increase knowledge, advocacy, and empowerment to access and advocate for services for their own children. Advancing the values of working with parents of students with special education needs is discussed.
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