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It is generally difficult for the government to come up with any meaningful programs for persons with disabilities (PWDs) unless statistics to that effect have been made available. Disability Statistics in Uganda is one of those areas of social statistics which has been growing at a slow pace in the past compared to other socioeconomic indicators, but now is an area of growing concern and picking up steadily. Censuses have remained the major data providers for disability statistics and the first of which was the 1991 census. The 2002 census similarly collected information on PWDs, and this information is to be widely disseminated at national and lower levels. Both censuses were conducted by the Uganda Bureau of Statistics (UBOS). UBOS has collected similar but a little more detailed information on disability using two household surveys.

However for effective program design, implementation and resource allocation for PWDs, a lot needs to be done in terms of harmonizing the concepts on disability with the International Classification of Functional Disability and Health (ICF). The power of the census results is that it provides data to the lowest administrative level. Conducting a fully fledged national survey for PWDs will provide adequate baseline data for meaningful purposes and priority issues for government and other users.

This report provides information on the various sources of disability data and how concepts are defined by each institution. It highlights the Uganda Bureau of Statistics, Ministry of Education and Sports (Annual School Census and the Department for Special Needs), Ministry of Gender, Labour and Social Development (Community-Based Rehabilitation Program) and the Ministry of Health as data collecting institutions. It is noted that each institution use different concepts and methodology for data collection. Engaging both users and producers in the disability data production process, encouraging regular dialogue and establishing collaborative arrangements with local and international research institutions are avenues for utilizing the scarce resources for the development of disability statistics. The focus and direction of the development of disability statistics in Uganda calls for a sustained system of monitoring intervention that government and other development partners have to put in place.

The issues raised in this report will facilitate the process of harmonisation of concepts and definitions used while collecting disability data. It is noted that except for the Community-Based Rehabilitation Information pilot system under the Ministry of Gender, Labour and Social Development, there is little or no use at all of the ICF. The pilot system is ongoing and is expected to expand to other districts. It is hoped that this will enrich the process of harmonizing concepts with the Integrated Community-Based Rehabilitation Information System to provide meaningful results. The process of coordination is hereby called for.

This volume is divided into three sections providing: information about the background of the development of this international effort to develop culturally compatible measures of disability for use worldwide; examples of what kind of measures are currently in place in a variety of countries; and finally, some examples of the exciting methodological work that is underway to improve measurement and provide the ability to make comparisons cross-nationally.

Barbara M. Altman, a sociologist with a Ph.D. from the University of Maryland is currently a special assistant on Disability Statistics at the National Center for Health Statistics and an adjunct associate professor at the University of Maryland, College Park. She is currently involved in revision of the measures of disability in the American Community Survey and has a key role in the Washington Group, an international group seeking to develop culturally compatible measures of disability worldwide. Her disability research interests focus in three areas: disability definition and measurement in survey data; access to, financing and utilization of health care services by persons with disabilities, particularly working-age persons and women with disabilities; and disability among minority groups. She is the author of numerous articles and book chapters on disability topics, and she is currently co-editor of the series Research in Social Science and Disability.