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Book part
Publication date: 7 July 2022

Matthew Bennett and Emma Goodall

This chapter focusses on the lack of research about fathers raising autistic children. It begins by presenting the results in the Braunstein, Peniston, Perelman, and Cassano (2013)

Abstract

This chapter focusses on the lack of research about fathers raising autistic children. It begins by presenting the results in the Braunstein, Peniston, Perelman, and Cassano (2013) study, which showed that there is not much research about fathers raising autistic children compared to mothers raising autistic children. Some of the key issues in research about these fathers, such as paternal experiences of raising an autistic child, are then presented. Several areas where more research can be conducted in the future are then outlined. These suggestions are based on the limitations in the examined studies and consequently what types of research could be conducted to address these limitations. Addressing such gaps can only occur if there are strategies that can be used to recruit fathers into autism research. To this end, some of the main recommendations in Davison et al.'s study about how to recruit fathers into studies are presented.

The original contribution that this chapter makes to the field of autism spectrum research is to explain areas where there is a lack of research about fathers raising autistic children as well as potential strategies that can be used to stimulate their interest in participating in such research.

Details

Addressing Underserved Populations in Autism Spectrum Research
Type: Book
ISBN: 978-1-80382-463-5

Keywords

Article
Publication date: 16 April 2024

Claire Bates and Rose Matthews

The purpose of this study is to explore the support needs surrounding intimate relationships and sexuality of autistic adults accessing funded social care in England.

Abstract

Purpose

The purpose of this study is to explore the support needs surrounding intimate relationships and sexuality of autistic adults accessing funded social care in England.

Design/methodology/approach

Semi-structured interviews with 15 autistic adults who were accessing funded social care examined their support needs surrounding intimate relationships and sexuality, with subsequent data analysis using reflexive thematic analysis.

Findings

Four themes were generated: Help at hand, but not too close for comfort, No “cookie-cutter rules”: personalised, inclusive approaches, Playing it safe, not leaving it too late, and Autism-informed education and support.

Practical implications

The authors produced an online learning module for social care staff in England on best practice in supporting autistic adults without learning disabilities with relationships and sexuality.

Originality/value

To the best of the authors' knowledge, there has been no other UK-based research published to date on the social care support needs of autistic adults without learning disabilities surrounding relationships, gender and sexuality.

Details

Advances in Autism, vol. 10 no. 2
Type: Research Article
ISSN: 2056-3868

Keywords

Book part
Publication date: 7 June 2024

Neil Kenny, Stuart Neilson, Jane O'Kelly, Jessica K. Doyle and Joan McDonald

There has been a paradigm shift within research exploring autistic experience in recent decades towards greater participation, agency and voice for autistic researchers and the…

Abstract

There has been a paradigm shift within research exploring autistic experience in recent decades towards greater participation, agency and voice for autistic researchers and the autistic community more generally (Fletcher-Watson et al., 2019). This approach has shown a greater focus on research oriented towards the priorities or preferences of the autistic community (Fletcher-Watson & Happé, 2019; Pellicano et al., 2014), curtails concerns regarding epistemic injustice and has influenced understandings of autistic ontology and neurology. Co-produced research, characterised by the inclusion of diverse stakeholders, builds trust between participants. Nonetheless, co-production in research requires careful planning and support (Stark et al., 2021), sometimes proving ‘turbulent’ and ‘challenging’ (Worsley et al., 2021). This chapter explores the experiences and reflections of a team of autistic and non-autistic researchers conducting co-produced research amid the global COVID-19 pandemic. With research practices and systems altered due to increased remote work, online communication and limited in-person interaction, this topic is especially pertinent. With the increasing emphasis on involving members of the autistic community in research at all levels of development, the impact of the pandemic on how participatory research is carried out may be complex. This chapter has implications for planning and conducting co-produced research in our new reality, considering both the opportunities and obstacles it presents.

Abstract

Details

Addressing Underserved Populations in Autism Spectrum Research
Type: Book
ISBN: 978-1-80382-463-5

Book part
Publication date: 28 February 2022

Anna M. Hinder

This chapter provides an insight into the career paths of autistic professionals in large private practice law firms. Rather than being a result of efforts to recruit autistic

Abstract

This chapter provides an insight into the career paths of autistic professionals in large private practice law firms. Rather than being a result of efforts to recruit autistic people for the first time through targeted hiring programmes, it is suggested that corporate law firms recognized these strengths early in their formation and developed a type of employment both well suited to autistic strengths and able to make accommodations. Six career stages from Law Student to Retired Partner are described with their opportunities and challenges to illustrate the career paths of autistic professionals who work in law. A call is made for an approach to inclusiveness of the autism community by employers and professional associations to create a system of employment system that supports the employment of many while meeting the unique needs of individuals.

Book part
Publication date: 7 July 2022

Matthew Bennett and Emma Goodall

Literature about autistic females remains scant despite the amount of research about the autism spectrum substantially increasing over the previous decade. This chapter begins…

Abstract

Literature about autistic females remains scant despite the amount of research about the autism spectrum substantially increasing over the previous decade. This chapter begins with an examination of the discrepancies between research about autistic males and females. It then examines three reasons why autistic females have rarely been researched, followed by some of the main topics that have been researched about autistic females. This chapter concludes with several suggestions for the creation of research about autistic females.

The original contribution that this chapter makes to the field of autism spectrum research is to explain the lack of research about autistic females. This objective is accomplished by presenting a synthesis of the literature about some of the barriers that prevent females from being diagnosed as autistic.

Details

Addressing Underserved Populations in Autism Spectrum Research
Type: Book
ISBN: 978-1-80382-463-5

Keywords

Book part
Publication date: 7 July 2022

Matthew Bennett and Emma Goodall

In the field of autism spectrum research, there has been a tendency to examine autistics without intellectual disabilities. This focus has come at the expense of examining their…

Abstract

In the field of autism spectrum research, there has been a tendency to examine autistics without intellectual disabilities. This focus has come at the expense of examining their peers with intellectual disabilities, who are generally regarded as needing more assistance due to more complex support needs. This chapter begins by defining intellectual disability, followed by an examination of the literature about the prevalence of intellectual disability in the autistic population. The results from the American Government's Centres for Disease Control and Prevention (CDC) Autism and Developmental Monitoring (ADDM) Network about the proportion of autistics with intellectual disabilities are then outlined. Following this, the results from studies about the proportion of autistics with intellectual disabilities are presented. The goal of this section is to show that despite there being evidence that about a quarter of the autistic population have an intellectual disability, this cohort is underrepresented within research about the autism spectrum. Two reasons for this discrepancy are then outlined. This chapter concludes with three suggestions for where more research can be conducted into autistics who have an intellectual disability.

The original contribution that this chapter makes to the field of autism research is to highlight the lack of literature about members of the autistic community who have an intellectual disability as well as presenting several reasons for this lack of research and directions for research in the future.

Details

Addressing Underserved Populations in Autism Spectrum Research
Type: Book
ISBN: 978-1-80382-463-5

Keywords

Book part
Publication date: 18 January 2022

Nadia Bhuiyan, Margaret Young and Daniel J. Svyantek

Over one million individuals diagnosed with autism spectrum disorder (ASD) will be entering adulthood and attempting to cultivate fulfilling, meaningful life experiences. These…

Abstract

Over one million individuals diagnosed with autism spectrum disorder (ASD) will be entering adulthood and attempting to cultivate fulfilling, meaningful life experiences. These young adults with ASD represent Generation A. The workplace will be a major element in cultivating fulfilling lives for Generation A. Social interaction is an integral component for functioning within most postsecondary and occupational settings. It is necessary to understand the interaction between autistic adults and organizations to understand potential social and behavioral deficits. The workplace is inherently a social place. Understanding both formal and informal social information in the workplace may be critical to successful job performance. Fit, particularly person–organization fit, is used to address this social nature of the workplace. Understanding this interaction helps provide a means for crafting both individual and organizational interventions which support autistic adults in the workplace. This chapter provides an analysis of interventions that support those with ASD in the workplace. It is proposed that these interventions will help create a more supportive work environment for those with ASD. As important, it is proposed that the accommodations for those with ASD are reasonable for any organization seeking to improve both satisfaction and performance for all its employees. By addressing these issues, organizations have the potential to create a more satisfying workplace for all workers, not just those in Generation A.

Book part
Publication date: 7 July 2022

Matthew Bennett and Emma Goodall

In this book it was proposed that autistic females and African American autistics are usually not participants in autistic research because they rarely receive an autism…

Abstract

In this book it was proposed that autistic females and African American autistics are usually not participants in autistic research because they rarely receive an autism diagnosis. If diagnostic services were made more congenial for autistics from these groups, then the prospect of them being diagnosed as autistic and being available to be research participants would increase. To help achieve this outcome, this chapter begins by presenting some typical barriers that autistics encounter when trying to access autism diagnostic services. This is followed by an explanation of some consequences of this exclusion for autistics, their families and the research community. In an attempt to mitigate these consequences, and to increase the pool of potential autistic candidates for research, this chapter concludes with a series of suggestions to improve the public's accessibility to autism diagnostic services as well as suggestions for improving the autism diagnostic process for both children and adults.

The contribution that this chapter makes to the field of autism spectrum research is to provide clinicians with some important concepts that will help autistics feel valued and accepted during the diagnostic process. A potential flow-on effect of this knowledge is that more autistics who have experienced feeling valued and accepted by clinicians will be more inclined to be involved in research.

Details

Addressing Underserved Populations in Autism Spectrum Research
Type: Book
ISBN: 978-1-80382-463-5

Keywords

Book part
Publication date: 20 April 2021

Adriana White

Once synonymous with books, libraries now provide a growing number of community services. Simultaneously, autism rates have increased worldwide. Improved diagnostic criteria have…

Abstract

Once synonymous with books, libraries now provide a growing number of community services. Simultaneously, autism rates have increased worldwide. Improved diagnostic criteria have given us a clearer view of autism’s ­prevalence. Once thought to primarily affect nonverbal Caucasian males, we now know that autism crosses racial and gender lines. As the diagnosis rate of autism grows, so too does the importance of ­libraries. Libraries are a vital community space – a place to safely interact with ­others and observe social norms. Libraries also house books and stories, which are critical to language and social development. As autistic adults age out of school-based programs, libraries provide access to technology and a sense of structure. Sensory-friendly libraries, with elements of Universal Design, are also benefiting the greater community – making libraries better spaces for all patrons. As the number of autistic adults grows, so too does the number of autistic librarians. Generations of adults who grew up in the library are understandably being drawn to the profession. They are comfortable in the workplace and ­especially skilled for the job. Their input in the field should be encouraged. This chapter aims to provide an overview of the importance of libraries to the autistic community and identifies libraries as a significant place that can help communities to better serve the autistic individuals in their area. Strategies and ideas for libraries will be shared. Libraries can also serve as a potential workplace for autistic adults, and more outreach should be undertaken to encourage autistic librarians.

Details

Hope and a Future: Perspectives on the Impact that Librarians and Libraries Have on Our World
Type: Book
ISBN: 978-1-83867-642-1

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